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Team Benny

UNFORTUNATELY, THIS STORE IS NOW CLOSED

If you missed out on purchasing during this sale, please speak with the coordinator of your organization about planning another Spirit Store in the future. Because items are processed immediately when the store closes, and vendors have already been contacted to ship blank goods, we cannot create new orders or add to/change orders at this time.  Thank you!

Watch your email for a notification that your order has been completed.

If you enjoyed the ease of using our Spirit Stores, please tell another organization! We appreciate you spreading the word!

 

WELCOME TO THE TEAM BENNY SPIRIT STORE! 

Our favorite little heart warrior is preparing for his next surgery, and your apparel purchase can help!

Thank you in advance for your purchase!  $10 of each garment sold goes back to help offset Benny's surgery expenses!

Store Opens:  Thursday, December 7, 2017

Store Closes:  Monday, December 18, 2017 - 9:00 AM  This closing date is firm!

When Will I Receive My Items? - On or around January 2, we will contact you via email letting you know that your garments are ready for the delivery method you chose during checkout.

PLEASE NOTE: ALL SALES ARE FINAL.  ONCE GARMENTS ARE DECORATED, THERE ARE NO REFUNDS OR REPLACEMENTS.  SIZING GUIDES ARE SHOWN FOR EACH GARMENT IF AVAILABLE.  USE THESE GUIDES TO DETERMINE CORRECT SIZES.

If you have another group interested in our Spirit Stores, feel free to contact our staff about setting up a store just for your organization!

Please check his Facebook page www.facebook.com/BennysJourney for updates on him and surgery dates. 

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Our son Benny was born on July 18, 2014 with a Congenital Heart Defect. His diagnosis is Double Outlet Right Ventricle with Subaortic Ventricular Septical Defect,  Supraventricular Tachycardia, Dextrocardia,  Heterotaxy with Asplenia, Malrotation of the intestines and Wolff-Parkinson-White Syndrome. In simple terms, the aorta and the pulmonary artery both come out of the right ventricle. Benny has a large hole between the both ventricles, he can go into episodes where his heart can beat up to 260 beats per minute, his heart and stomach are on the right side of his body, his intestines are not rotated properly and can twist and he has no spleen. Since he has no spleen, Benny needs to take antibiotics twice a day for the rest of his life and we need to be extra careful he doesn't get sick so he doesn't end up in the ER.

At 3 weeks old, Benny had to get a PA band around one of his pulmonary artery to slow down the blood flow into his lungs. That is a temporary fix until he receives his open heart surgery later this year to repair the hole. He will also require an additional surgery to fix his malrotated intestines and hopefully he can outgrow his SVT. We've had a few other scares where we've had to rush him to the ER in St. Louis because of his SVT (fast heartbeat).  During one of his episodes, it took 10 hours to get him back to normal heart rhythm. The Doctors had to shock his heart 3 times and drain fluid from around his heart. Our Benny is a tough fighter and will continue to fight.

Please help us raise awareness and raise funds for Benny’s Medical expenses for his upcoming open heart surgery.

We are raising money for Benny’s battle against a Congenital Heart Defect called DORV with VSD and SVT. This will help us with his medical expensive during his open heart surgery this year.

Follow Benny's Journey with CHD on Facebook  www.facebook.com/BennysJourney 

 Thank you, and God bless.

 

 

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